Friday, March 20, 2009

Oh love and an Austin update

Ashley is doing wonderful! We just adore her and love having her as part of the family. She had her check up on Tuesday and is almost back to her birth weight at 8lb 2oz. I'm sure she is back up already. She is a great sleeper and champion nurser and just a very calm baby. So easy to love! This morning Julie came and picked me up and we went to the children's mass. She was a small celebrity there of course and we then went and visited the individual classrooms too. It was GREAT to see all the staff and students at St. Elizabeth! She has actually been out quite a bit this week. Joe and I took her to her well check then had to kill some time waiting for a prescription to be filled so we went to eat at Bob Evans and toured Babies R Us. Joe insisted we buy a pink bouncy chair, you know the gender neutral one I got for Tommy's shower is just not good enough for our Ashley. The house has been pinked out and Joe is talking about redoing her room from Pooh to Princess's. Can you say spoiled? Meanwhile her forest green carpet is the nicest in the house and could be the first to be pulled up. Wednesday she got to go to Austin's cardiologist appointment in our first family outing together. Yesterday my Mom and Aunt took us to eat at Red Lobster. Yums! She definitely draws a crowd when we are out. Thankfully I think cold/flu season is over. Happy Spring!

In other news I need to update on Austin's IEP last week and his visit to the cardiologist this week.

IEP - I'd been nervous about what to do next year, repeat K or on to 1st. He's actually done very well this year and I don't know why I get these doubts but his teacher is certain the best move is 1st grade. She emphasized that he would be very bored with another year of K. He has really learned a lot this year. He is nowhere near top of his class but she said he's keeping up fine academically and has some very good skills and takes his work very seriously. So that is good news. His physical goals are coming along okay as well. Righty is pretty much a helping arm, the hand is I don't want to say a lost cause but it's only going to be an assist and the function is not coming too well. He is now learning ways to overcome this. He can confidently undress completely if there are no buttons or snaps and can dress himself completely usually too if it's a short sleeve shirt. He's doing well with his day to day functions. He will continue to get OT/PT through the ISD and really likes his therapists. He doesn't like missing out on his regular class though. So overall things are well and he is off to the rigorous 1st grade!! Wow! His reading skills are definitely improving as he has easily memorized all this sight words and is now starting to sound out some simple words. He loves books and reading so that is half the battle. We will work on it a lot this summer.

Cardiologist - That appointment went well. He only goes once a year because of a heart murmur that was caused when they did his ablation when he was 2 days old. This is the appointment I dread and fear so much. Hearts are just so tender. Joe got to go to this appt. since I can't drive so it was good for him to see Dr. Zreik too. He got kind of choked up thinking about the rough start Aus had and how Ashley's experience has been so perfect. Joe thanked Dr. Z again for that birthday when he stayed by Austin's side for almost 12 hours before deciding to airlift him to U of M. The doctor says he remembers it like it was yesterday because nothing was working and it was such an odd case, worst he has seen. The U of M docs said it was the worst they had seen in about 25 years and that kid was 5. Poor Aus, such a rough row to hoe sometimes. His murmur has shown no change which is awesome. Every year the doc reminds me though that we have daily meds in our future and a surgery for a valve replacement. We will just be hopeful that it is many years and maybe decades down the road before we go through that. I'm sure whether he is 10, 20, 30 or beyond it will be heart wrenching to have to watch him go through that. For now we will just hope that he can stay the course and hopefully in 20 years the technology is even better than it is today. We are lucky that he has absolutely no restrictions, he can play as rough as he wants and can ride the wickedest ride at Disney! Yeah!


Julie said...

Yes, have to agree. No comparison to the beginning of Austin's life and Ashley's. But oh - that little guy is a charmer with the blond hair and blue eyes. He has come so far so quickly. And no doubt GREAT news about no restrictions on Disney rides - now that was a worry (hee hee).
Someone is seriously thinking about removing Pooh?!?! for princess? and no Tigger too?

Renee said...

Ashley is so precious! I think she looks so much like the boys! She has won her daddy's heart already!

I am glad Austin is doing so well. He is such an handsome little guy. I love his smile with his sweet blue eyes. Way to go on moving up to 1st grade Austin! Such a trooper.

Lisa said...

Hi guys, she is beautiful!!! What a special blessing. She sure looks like Austin! Awesome that she is gaining and growing. Great news for Aus as well. He sure is a cutie. Shane really likes him and will miss him next year! Hope you are all doing well and god bless

Sheila said...

Ashley is so beautiful! Love the pink! Glad to hear Austin is doing so well!

Debbie said...

Love the new pics :) I totally see Joe in her! Need that red hair to come out now ;)

Great news on all fronts for Austin! WTG Big man!

Dawn said...

Hey girls! Thanks so much for the comments on both my kiddos. Things are just going so well on all fronts these days.

Lisa- We will certainly miss Shane next year. He is just so helpful for Austin and is definitely loved by him. At least he'll still be around for softball and such.

Amy said...

Super pictures, I love the one with Ashley's mouth open:) What a cutie!!

I'm so glad that Austin did so well at his appointment!

Ashely is your angel on earth and Austin is your miracle boy!!

And of course, Tommy is your boy who can't get no sleep;)

Dawn said...

Thanks Amy, you made me laugh about poor Tommy. Last night was much better for him thankfully. :)

Kiera Beth said...

Wow is she beautiful! I am glad to you are able to leave the house a little with her also!

So glad to hear that things continue to be OK with Austin's health. I am so impressed with your energy to have that appointment within a week of Ashley's birth. You continue to amaze we with your strength :)

Keep the pictures of all of them coming! I love to see it!

Jill said...

Great news all around for you!!

We worried about Ashley and she turned out great!!
We Worried about Austin and he is doing great.
Our worrying brings great things. (The bible would disagree with me but we do have a great turn out all around!)

Love all the pictures. I can't wait to see the family picture at Disney!

* ~ *Jessica* ~ * said...

Ashley is beautiful!!! She is a lil chunk! I can certainly see how she draws a crowd!
I love that Joe wants to change up her room! Thats funny. Costly, but funny! :)

Dawn said...

Thanks KB, JM, & JD, lots of family luving over here! Things are good!

Barbara said...

Ashley is beautiful! I'm so glad things are going well and she's thriving and stealing everyone's hearts.

As for Austin, it sounds like he's doing really well. Yay for 1st grade!!!